Mar
28

The End of the Caregiver’s Journey

The end of the caregiver’s journey is often introspective, reflective, speckled with regret, remorse, guilt, blame, and the whole gamut of human emotions.  You may find yourself feeling guilty for feeling relief, or regret the last things said, or even how you handled specific situations. The point is that at some point the caregiver’s journey does end.  We all will process the event in our own way.  This will be a personal, individual process, others cannot tell you how to feel, or even when to cry or how to grieve.

Some caregivers will collapse at the end, having given everything through the journey, and now cannot conceive of a world without their charge.  Some will remain in “Management mode” handling every last detail, never breaking, and being the rock to everyone else.  Or caregivers can react in any of a thousand ways – it depends on the unique situation, and your unique relationship.

For me, I was the Manager type.  Always in charge, always the rock.  Never asking for help, declining offers of assistance, holding fast to the reigns.  At the Hospice, I never cried, I had to stay in charge.  However, as I drove home from the Crematorium, my mother’s ashes clutched in my arms, I began to realize that the Strong, Self Sacrificing, Managing, Independent caregiver was  only how it looked on the outside. As I drove with my arms locked around what remained of my mother, I felt primitively possessive.  I did not want to share, I did not want anyone there with me, I wanted no interruption. I clung so tightly to the box that my arm began cramping.  Was all that self-sacrifice, all the dutiful visits, all the Super-woman caregiver behavior really only a primal possessive emotional attachment? Pulling over to a vacant service station, I parked and broke into a cathartic screaming cry. Releasing years and years of pent up frustration, guilt, possessive angst, fear, sadness, anger, loss and grief.

At the end of this journey, I, like all caregivers, had to find the closure, find the path back to our own journey, the one where others wait to walk with us.

Mar
13

The Hospice Part of the Journey

As I sit by my mother’s bedside, I am struck by how quiet and peaceful it is here. I have been playing my mother’s favorite music for her, even though she is not awake. But just like when I hold her hand, and pet her cheeks, I know that at some level it brings happiness or contentment.

My mother has been in a nursing home for 2 years. The first year was an adjustment – new routines, new limitations, new realities.  This was her journey, and I was there to walk with her, hold her hand and make it as easy as possible, and stand between her and any fear or challenge she faced.  This journey had times of smooth sailing, places where the road dropped suddenly, and times when we couldn’t see our next step on the path.  My job was to see as far ahead as I could, so I could help her be confident and unafraid with each step.  Her reality changed, as did her vision and understanding of the journey.  Still my job was to help her and make her happy, comfortable, and secure in whatever her reality was – this was not about me – it was about her.

I think that we, as family, make the mistake about making this journey about us, or about others.  We will each have our own journey, in our own time, but when those we love near the end of their journey, it is about them.  When we wring our hands, and cry over our loved one, in front of our loved one, we make it about us, and expect them to comfort us.  In this, their time of confusion, fear, shifting reality, loss of abilities, etc., we seem to demand that they remain in our reality, arguing with them, correcting them, which makes them feel “less” “dumb” “silly” or “wrong.”

Now, my job is clear. I stay strong, I don’t weep in front of her, I sit by her, talk with hear, hold her hand, play her music, sing hymns, talk about the old days, tell her funny stories, always positive, always loving.  Crying is for the living, not for the dying.  Crying doesn’t help her, it might even scare her, or make her feel bad, that she is causing the tears.  No.  I can cry later, or I can cry in another room.  But here, with her, I am strong, I am steadfast, I am her rock.

Her eyes, when she opens them, seem to look through or past me, if she sees me there is no recognition now.  She squeezes my hand when I try to move my hand – is that autonomic or is it that she doesn’t want to let go?

The nurse says that if she is in pain that her fists would clench, but her’s lay gently, peacefully calmly on her stomach. Her face, seems younger, the wrinkles that gravity used to pull at, now seem to have relaxed to a softer texture.

There is a peace here, a quiet, peaceful air, broken only by the staff talking, or coming in to check on my mother.  This is a nice place for her. Because after all that she had done for everyone else in her life time, after all that she has given, all that she has sacrificed for others, all the times she took a back seat, or did without, after all that, at the end of her amazing journey, it is all about her.

Sep
14

Caregiver Concerns: Suddenly You’re a Caregiver

Top Caregiver Concerns when Suddenly You’re a Caregiver:

How will I juggle everything?
I have a full time job and a family?
How can I do it all?

When suddenly, you’re a caregiver, the world can begin to spin, information, emotion, and physical overload sets in.  Decisions must be made, big decisions, life-changing decisions for both you and your parent. You realize your world has been over-turned, in such a way that you’re not even sure you can find all the pieces.

For some, becoming a caregiver is planned, much in advanced, arranged and all those involved have had a bit of an adjustment period.  Even though, when the time comes, it can be a bit of a shock.  For many others, the role of caregiver is something they were handed one day over the phone, or while rushing to the hospital.  In an instant, their life had changed.

What do I do NOW?
My house is not set up to care for my Mom!
Do I have to sell their house?

So how do you begin? How do you incorporate this monumental responsibility, the new demands on your time, schedule, energy, and emotions, into your already full and busy lifestyle? How do you balance your new role and still care for your family, work your job, and build you life?

These are the questions new caregivers are faced with, usually on Day One. The answers aren’t always easy, because in truth this is a journey that includes sacrifice, compromise, adjustment, understanding and lots of juggling.  And even though, in the beginning, as you stand in the doorway, looking forward at your new responsibilities, you should also know that there is much joy, happiness, love, compassion, and honor along this path as well.  I speak from over 10 years experience, caring for my mother, raising 2 kids and being the primary breadwinner, it can be done, and it is so worth it.  You will never come to the end of your life and wish you hadn’t spent time caring for your parent. However, you might resent that you allowed your health to decline, or your world get out of hand, or didn’t take that family vacation etc.  Those are all things that can be managed and as a caregiver these are your rights.  Asking for help is one of the basic skills, you must develop.

One of the best perspectives I can offer, is that suddenly taking on the responsibility of caring for your parent is like finding out you’re going to have a baby. Even though you are adding a new life to your world, you will adjust and find the joy and a new rhythm  to step to.  You can also look at caregiving as a job, and as a job, it can be broken down into tasks, schedules and planning.  Not every task will take hours, and not every decision will be life-altering.

But most importantly, you must, and I am very serious about this, you must ask for help when you need it, or when it is offered.  Help is other’s way of showing they care for your parent or you, let them show it in way that is beneficial, and actually helps reduce your stress or workload. Another type of help is outside help, such as senior day care, to give you some time for work, errands, family, etc.  But aside from just helping with the day to day, the chores, the tasks, etc., you should remember that you need support in order to coordinate, organize, and thrive in this role.  This support can come in many forms, such as support groups, forums, Caregiver Coaching, and more.

This is your parent’s journey, but does not mean at the expense of your life, health, happiness and future.  You need to thrive, be happy, grow, and live the best life you can, so you can give the best to your parent.  An angry, depressed, resentful caregiver is every elder’s nightmare.  Find out how to pull it together, be the best you and the best caregiver you can be.  Ageless Journey offers tools, forms, resources, coaching and information to help you pull it together and coordinate your parent’s care and your life into a beautiful harmonious package that works.  Find out more here and contact us today!

Sep
11

Assisted Living: Help in Choosing the Right One

 

Assisted LIving Decision made EasyThe choice to move to an Assisted Living Community has already been made – that was the tough one! Congratulations on surviving that one.  But you aren’t out of the woods yet.  Not all communities are alike, some are better than others, others are just different.  It is important to know what you  and your parents want, what they need, and what would make it even better or special, before you get too far in your search.

The first thing you will need to know is where your parents are in the scope of their health, livelihood, mobility, independence, and mental state.  What services do they need that they cannot get at home?  Begin to make your list.  Begin with what they have now, and why it is lacking.  Is it safety features they need? Is it a sense of community to keep them from being lonely?  Is it food service? Cleaning service?  Is this a Peremptory move? What about later? How is the need for more assistance handled?

Now think about what they would like to have.  What activities do they enjoy?  Can they do them on their own or do they need assistance?  What about transportation?  Do they enjoy travel, or vacations? These extras might be the deciding point.

Armed with this information, you can begin your search.  You can  begin online or on the phone, collecting information to compare, or you can go in person to begin with “first impressions.”  Be sure to ask each community for written materials, such as residency agreements, fees, extras, staffing ratios and rules and guidelines.

In addition to all the written materials, you will want to “interview” each community.  The Assisted Living Federation of America offers a checklist with excellent questions you can ask each community.  This way you can be sure you are comparing apples to apples when you are making your decision.  You will want to know about accommodations, care by professional staff, amenities, and so much more.  Click here for the Assisted Living community evaluation checklist

So, continue on, armed with the information that will make this already difficult decision much easier, and perhaps fun!

Sep
11

Aging Parents: Are You Lost in Your Caregiver Role?

Aging Parents: Losing yourself in your caregiving roleCaring for your Aging Parent is certanly time consuming, and I’m not arguing that you find little time for yourself.  But who says you are being selfish, or slacking on your responsibilities if you take care of your own health too?  According to the National Family Caregivers Association, almost 75% of family caregivers fail to go to their own doctors when the should.  That means those Mammograms are falling behind, those pap-smears, followup visits, and annual physicals are not being scheduled.  Who does that serve?

You are right, no one, and I can hear you, as you read this, “if I could take the time, I would!  I know it’s important, but something always comes up!” Yes, I know. You are doing the best you can, but if you lose yourself in this role, there will be nothing left of you to care for your parents, let alone your family, your grandkids, etc. But this logic is “in the weeds” talk.  You are so buried in the weeds, in the day to day that you cannot see down the road.

It is so important that you take a big picture or long view look at this journey you have agreed to accompany your parent on.  Without a long view, you cannot possibly have a grasp on how you will need to plan, what you will need to plan for, or even how it will affect you, your family etc.

You must realize that if you are to continue at this pace, you must build in to the schedule time for you.  For example, having someone come in on Thursdays so you can schedule doctor, dentist, and car appointments.  You could have lunch with friends, after all, the same report shows that 63% of caregivers report having poor eating habits than non-caregivers, so eat well!  What else would you do with a day all to yourself?  Can’t get a day?  What about a time of day? What if you could have from 1:00 to 4:00 pm a few times a week.  There are volunteer groups, friends, family members that could alternate, you just need to prioritize your own needs.

So, what can you do right now, who can you call, what can you arrange to set up a day, or some type of rotating schedule for you?  Don’t just read this article, see that what I am saying is true, and not do anything about it.  Take care of you, because what you do, what you provide to your parent is the most precious gift, anyone could possibly give.  It shouldn’t cost your your health or your future.

If you find that you can’t prioritize your health, your happiness, your well-being, or your future, don’t just give up!  I can help! As an Eldercare Coach, I focus on helping Caregivers, just like you, live their best life, while giving their parents the gift of their love. Contact me at info@ageless-journey.com to find out how I can help you live your life, without compromising the care you provide.

Sep
11

Treating Dementia with Love

DementiaWhen I was a baby, my maternal grandmother came to live with us.  Initially, it was so my mother could get a part-time job to help pay for my birth expenses, but she lived with us up until after I graduated from High School.

I remember my mother had heard that small amounts of wine were good for her blood, heart and brain.  So she would pour my grandmother a half glass of wine and add some lemon-lime soda.  My grandmother loved Lawrence Welk, and walking by her room one evening, I noticed her holding up her pocketbook in front of the TV.  I walked into her room and sat on the bed next to her chair.  “What’chya watchin?” I asked.  “Lawrence Welk.  Isn’t he marvelous?” she smiled.  Then, she carefully, and quite slyly, lifted her pocket book with her right hand, so as to block the TV screen, and quickly reached for her wineglass with her left, took a quick sip, and returned the glass to it’s place on the windowsill before lowering the pocketbook.  I was amazed at how deftly she coordinated that little move.  I asked her why she did that.  She responded, quietly, “I love Lawrence Welk, I don’t want him to see me drinking wine!” I thought I was going to bust my teenaged guts!  I proceeded to explain to my grandmother that this was a TV, and that Lawrence Welk could not see her.  She smiled and nodded.  I could see she thought I was crazy.  I proceeded with more  urgency and more detail to explain the logic behind my story.  She smiled, again performing her graceful pocketbook block, and finishing her glass of wine.  As she lowered her pocket book, she could see that the final dance segment that signaled the end of the show had commenced.  She looked at me with great concern and said, “What are we going to feed all these people for dinner, now?”  For days, weeks and months, I continued to explain the logic of TV and how people on the TV could not she her, although she could see them – to no avail.

For years I thought I had failed my grandmother, never being able to save her from her confusion.  Thinking that somehow, if I had been able to get through to her, she would have been the “Gram” I had always known.  Soon, she began getting angry with me, because I was evidently hiding the stairs from her, so that she could not go back to her “Other” room, where she had just been this morning, the one that, yes, did in fact look exactly like this one, but it was upstairs.  I again tried my logic approach, surely if I could explain it clearly enough, she would see that she was wrong.  This just made her angry that I was always trying to confuse her by lying to her.

As I now see my mother saying and doing exactly the same things that her mother did, I finally realize that I had been so sadly wrong in my approach to my grandmother.  I realized that logic had nothing to do with her reality, and that all the explaining, repeated attempts to make her return to a more logical reality were only making her angry, and alienating her from the one person she trusted; me.

I now know that her world is scary enough, familiar things seeming strange, memories hazy shadows, and no one seems to believe her, she needs me to always be on her side, even if it is a flight of fancy.  After she watched a police drama on TV one day, my mother was determined to do the right thing – she needed to tell the police that she saw who did it, and that he was hiding in the hotel.  She was very adamant about it.  I listened to her story, agreed that this was the right thing, and that I would go, right now and tell the police for her, she had been through enough.  I left the room, and after a few minutes returning to pass along the “praise and thanks” from the police officers to her.  She was happy, relaxed and had a bit of confidence about her I hadn’t seen in a while.  This was a much better approach than the one I had tried with my grandmother, lo those many years ago.

Do you have a loved one with dementia, confusion, Alzheimer’s Disease? Are you still correcting them? are you still trying the force them to see your reality?  What would happen if you tried to see THEIR reality?  They are on this path already, they sure could use a friend.

Sep
06

Could Caregiving Jeopardize Your Job?

You are juggling your social life, your personal life, your family life and your professional career, all while caring for your aging parent.  You would think there should be a medal for all that balancing.  Instead, there are still companies that see caregiving as an undesired distraction.

It wasn’t that long ago, when baby boomer women made their demands known about requiring flexibility in the workforce regarding the need for child care, and work/life balance.  With a rapidly growing aging population, it seems this generation is once again preparing for  battle, only this time the subject is elder care.  According to the June 2011 report by MetLife Mature Market Institute, the percentage of adult children, aged 50+  taking care of parents has tripled since 1994.

The Families and Work Institute reports that in the past 5 years, 42% of U.S. workers have had elder care responsibilities and 49% expect to care for an older family member or friend in the next five years.  This trend to care for our family and loved ones is not a fad, and as this generation of baby boomers continue to age, the percentages will be even greater.  Companies must again evaluate the needs and demands of their working population, and pull their heads from the sand.  Providing resources, assistance and flexibility to workers who are providing care to their families is going to be a major topic now and for the next 10 years.

The stress of balancing the status quo is costing American companies billions of dollars already.  According to a 2006 MetLife and National Alliance for Caregiving study, companies spend more on recruiting, hiring and training, and lose productivity and experienced employees, and have higher health care costs for stress-out workers.  As in the days of “working mother’s rights” the stress of balancing these herculean tasks cause tension, family distress, depression, illness, as well as turnover, retraining, and loss of productivity.  According to a new AARP report, 40 to 70% of family caregivers of older adults have clinical symptoms of depression; one-quarter to one-half meet major depression criteria.

Until the corporate and business communities begin to make widespread change, adding, like some innovative leaders have, flexibility, elder care coaching options in their employee assistance programs, corporate resources, informational seminars or speakers, and even group coaching, workers may have to continue to seek these services on their own.

Resources are available from many sources such as government agencies like Medicare and Medicaid, Senior specific organizations such as AARP, and national associations for caregivers.  Assistance is available from providers such as Skilled Nursing support, Respite care providers, and Senior Day Care facilities.  Eldercare Coaches can usually provide lists of resources, services, tips and other information to their clients or site visitors.

Sep
03

Eldercare Coaching: Real Support for Adult Children Caring for their Aging Parents

80% of Baby boomers are very concerned about the ability of their senior parents to age in place

82% of Baby boomers are concerned that if they must move into a facility their parent might be mistreated

Yet …

60% of Baby boomers are not concerned their parent might have to move in with them.

As the child of an aging parent, you are faced with decisions you never thought you would have to make.  You are involved in aspects of your parent’s lives that you never expected to be involved in.  You feel alone, overwhelmed and don’t know how you will be able to make all the decisions.  I understand your situation, completely; as the primary care giver of my 89 year old mother (don’t tell her I just called out her age!) , I have lived through what you are experiencing.  I can help you find your strength, be there for your parent, and find the joy in the things that are important, and accompany them on their Ageless Journey.

Everyone’s situation is different.  You may have chosen this role, you may have stepped into this role by default, or as the only one who would.  You may be working closely with your family members, but since you live closer, you have the day-to-day responsibility.  Or maybe you are not the primary caregiver, but you struggle with having to fulfill your role and participate in decisions from a distance.  Here are some statistics to help everyone see a bigger picture: 80% of boomers said they thought that health issues would be most likely reason the parent would not be able to remain living in their own home. While 65% thought it might be more likely to be be their inability to drive or get around. 54% felt that it might be Memory probles that was more likely to be the reason.

You might use these statistics to start a conversation with, or help to gather your support system.

No matter what your  role in your parent’s care, it can be stressfull, nerve-racking, terrifying, depressing, and spiritually, emotionally and physically destructive.  You don’t have to blaze through this challenge alone.  Eldercare Coaching is designed to help pull together resources, tools, support systems, family and friends, to support not only your parent(s) but you!  Too many caregivers burn out in the first year or two, not being prepared for the full scope of the responsibility.  But just as important, too many lose sight of a amazing privilege, honor and joy of being there for your parent, when they need you!

Contact us for more information on helping you and your family survive and thrive during this amazing journey.

Sep
03

Senior Health – Are Your Prescriptions on “The List”

Are Your Prescriptions on the LIST?Many prescription medicines are prescribed for life, and as a patient ages, often the prescription isn’t modified due to changes in age. For example, did you know that adults 65 years and older should not be taking Naproxen (Aleve), or chlordiazepoxide (Librium), or diphenhydramine (Benadryl)? These, and many more medications are listed on an “Always Avoid” list called the Beers criteria  (This is the full report – for just the list, scroll down to RESULTS section), published by the Archives of Internal Medicine.  According to the Beers criteria, “Medications toxic effects and drug-related problems can have profound medical and safety consequences for older adults.” the Beers criteria lists potentially inappropriate medication for use in adults 65 years and older.  The Beers criteria contains approximately three dozen medications that can cause adverse side-effects when given to older people, ranging from memory problems to dizziness, falls and high blood pressure. In a study by the Archives of Internal Medicine, elderly women over age 65 were twice as likely to get an inappropriate prescription as elderly men, and the risk of getting an unsafe medication was higher for patients who took several medications compared to those who took fewer medications.

A printable version of this report is available in our Free Forms and Checklists area, called, “Updating the Beers Criteria for Potentially Inappropriate Medication Use in Older Adults”.  Print out this list and take it with you to your next visit to the doctor or pharmacist.  Have them check if your medications are on the list, and what options or alternatives you have.

Take my mother, Helen’s story, for example. My mother was diagnosed, at age 62 with Postherpetic neuralgia, after an attack of shingles left her with permanent pain in her left side. Traditional Medical treatments for Postherpetic Neuralgia include steroids, antidepressants, anticonvulsants and topical agents.  The doctor prescribed the antidepressant Amitriptyline for the pain.  She took this for 18 years. Amitriptyline affects chemicals in the brain. She eventually began to succumb to dementia. At age 80 (well past the Beers criteria recommendation), she was becoming confused, agitated, forgetful, disoriented and had began to fall more often.  At this point, we opted to try natural alternatives for the medications she was taking.  For the neuralgia, we used essential oil blends topically.  After only a few months off of the Amitriptyline, her mind cleared and she remained competent, and alert!  Adults over the age of 65 should review their medications to the Beers criteria list provided above with their doctors.  If they are taking medication on this list, you should ask about alternatives.

Be sure to talk with your doctor before you stop taking any medication, and be sure to talk with a reputable natural health professional about your health concerns, if you are opting for  natural alternatives. Many natural alternatives can be taken at the same time as prescription medications, allowing you to wean off of the prescriptions without interruption of relief.

In a recent independent study, nearly one-in-twelve elderly patients received one or more drugs from the “always avoid” list when either filling an existing prescription, or get a new prescription for medication.  Arm yourself with knowledge, and take back the control of your own health, or the health of those you love!

http://archinte.ama-assn.org/cgi/content/full/163/22/2716

Sep
03

Aging Parents: Do You Know Your Parent’s Health Information? Do They?

Do you know what medications your parents take, the dosage and how often? Do they?Sometimes it is the simplest thing that can make the biggest difference!  From giving you piece of mind, to even opening doors that were previously unavailable.  For example, can you, or your parent put your hands on important medical information in the case of an emergency?  If paramedics ask for a list of all their medications, or if they have high or low cholesterol (and what are the numbers) would anyone be able to put their hands of that quickly?

This type of information is important, and it is important to have it available in case you need it quickly, fumbling with handfuls of bottles, jars, boxes and file folders can create more stress.

Whether you are new to being the primary caregiver to our parent, or whether you have been doing it for a while in a “hands-off” capacity, gathering important information together is something that everyone can agree is important, yet is so simple, there is usually little resistance from the parent.

In addition to having the information handy, the process of collecting this information can also have amazing benefits.  Working together to gather this information, helps to break down some of the walls of communication, might give you access to information you’ll need for other situations, and helps to build trust, and understanding where it might have been difficult before.

Using a form to gather the information is helpful, because you have a goal – it is the form that is requiring the information, not you being nosey.  Your parents can be involved, and it can be a project, or you can ask them to fill it out for you.  There are many ways you can use a form to build avenues of communication and trust.

If you don’t have a form, you can download several handy forms here, or you can make one.  Be sure that it includes areas to write down health information such as Cholesterol numbers, blood pressure numbers, blood sugar numbers,  and medical information such as the doctor’s name and phone number, insurance info, emergency contact info, etc.  You should also have a list of all medications with dosages, frequency, and any allergies or special information.

You will be amazed at how, not only gathering this information will help alleviate stress and worry, but also having access, as well as copies in handy locations can ease your role as caregiver, ease their fears and anxiety, and even provided needed trust and communication if you didn’t have it before.

Start the conversation today.

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